Program

Day 1

Thursday 20 April 2017

08.00 – 09.00 Welcome coffee

General introduction (Chairs: A. Bottomley & H. Flechtner)

09.00 – 09.15 Introduction by the Conference Chair (A. Bottomley) videoplay_16x16_2016
09.15 – 09.30 The EORTC Director General (D. Lacombe) videoplay_16x16_2016
09.30 – 10.00 Key note presentation – What have European politicians done for cancer patients? (M. Matias) videoplay_16x16_2016
10.00 – 10.20 A global perspective on QOL (C. Gotay) videoplay_16x16_2016

10.20 – 10.40 Coffee break

Cancer patients and the principles of cancer care – Part I (Chairs: C. Coens & M. Groenvold)

10.40 – 11.00 A broader perspective on Patient-Reported Outcomes from the International Society
for Quality of Life Research (G. Velikova) videoplay_16x16_2016
11.00 – 11.20 EMA’s oncology PRO guideline – Impact one year on (D. O’Connor) videoplay_16x16_2016
11.20 – 11.40 Patient reported outcomes in U.S. Regulatory review of cancer therapies (P. Kluetz) videoplay_16x16_2016
11.40 – 12.00 The Sponsor Perspective on QOL: Current Challenges and Opportunities (A. Campbell) videoplay_16x16_2016

12.00 – 13.00 Lunch

Cancer patients and the principles of cancer care – Part II (Chairs: V. Golfinopoulos &
D. Fitzsimmons)

13.00 – 13.20 The EORTC Quality of Life Group’s updated strategy (M. Groenvold) videoplay_16x16_2016
13.20 – 13.35 Optimizing Quality of Life in cancer clinical trials from an Eastern European perspective (K. Tomaszewski) videoplay_16x16_2016
13.35 – 13.50 The Role of QOL in Trials that Matter: Canadian Cancer Trials Group Experience (J. Ringash) videoplay_16x16_2016
13.50 – 14.10  QoL in breast cancer care – ECIBC experience (S.Deandrea) videoplay_16x16_2016

14.10 – 14.30  Coffee break

Cancer Patients Experiences in clinical trials (Chairs: M. Matias & R. Wilson)

14.30 – 14.50 The European Cancer Patients Collation perspective on QOL in the EU (K. Apostolidis) videoplay_16x16_2016
14.50 – 15.10 PROMS – Pathway to patient benefit? (R. Wilson) videoplay_16x16_2016
15.10 – 15.30 Understanding the role of the patient in improving patient information and recruitment across the European Union (Š. Narbutas) videoplay_16x16_2016
15.30 – 15.50 The patient’s perspective – Getting out of crisis (K. Oliver) videoplay_16x16_2016
15.50 – 16.10 Patients’ experience of electronic patient QOL data collection platforms (B. Holzner)

Day 2

Friday 21 April 2017

08.00 – 09.00 Welcome coffee

Innovative methods and standardization in cancer research – Part I (Chairs: M. Koller & J. Sloan)

09.00 – 09.20 The computer-adaptive testing version of the EORTC QLQ-C30 (M. Groenvold) videoplay_16x16_2016
09.20 – 09.40 Looking into the future: Can body worn IT systems and computerized touch screens record cancer survivors’ experiences? (B. Holzner) videoplay_16x16_2016
09.40 – 10.00 International standards of Analysis – The SISAQOL initiative (M. Pe) videoplay_16x16_2016
10.00 – 10.20 Moving toward standardization of clinical significance (J. Musoro) videoplay_16x16_2016
10.20 – 10.40 Understanding EORTC measures (D. Fitzsimmons) videoplay_16x16_2016

10.40 – 11.00 Coffee break

Innovative methods and standardization in cancer research – Part II (Chairs: H. Flechtner &
E. Greimel)

11.00 – 11.20 PRO-CTCAE and US perspective (A. Dueck) videoplay_16x16_2016
11.20 – 11.35 C-Path’s PRO Consortium: A multi-stakeholder approach to PRO assessment in clinical trials (S. Eremenco) videoplay_16x16_2016
11.35 – 11.50 Missing Data Analysis (J. Sloan) videoplay_16x16_2016
11.50 – 12.20 Key EORTC trials and examples of analysis of QOL in clinical trials (C. Coens) videoplay_16x16_2016
12. 20 – 12.40 Setting international standards for translation of PRO measures across the EU (M. Koller/D. Kulis) videoplay_16x16_2016

12.40 – 13.40 Lunch

Innovative methods and standardization in cancer research – Part III (Chairs: J.C. Reijneveld & J. Ringash)

13.40 – 14.00 Changes in symptoms and function during cancer treatment (C. Cleeland) videoplay_16x16_2016
14.00 – 14.20 Sexuality, its measurement and its assessment in EU cancer patients (E. Greimel) videoplay_16x16_2016
14.20 – 14.40 Cognitive, neurological impact of cancer in survivors (M. Taphoorn) videoplay_16x16_2016
14.40 – 15.00 Adolescents and young adults with cancer: What determines their well-being? (A-S. Darlington) videoplay_16x16_2016

15.00 – 15.20 Coffee break

Cancer Survivorship (Chair: F. Meunier)

15.20- 15.40 What is the current EU cancer survivorship strategy? Current EORTC approach (J.C. Reijneveld) videoplay_16x16_2016
15.40 – 16.00 Survivorship issues from patient and scientific perspectives? (I. Verdonck-de Leeuw) videoplay_16x16_2016
16.00 – 16.20 Survival: diagnosis or lifestyle? (R. Wilson) videoplay_16x16_2016

16.20 – 16.30 Conference summary (A. Bottomley) videoplay_16x16_2016